Understanding What Dementia Feels Like: A Personal Journey

In my personal journey, I have encountered various health issues that have challenged my understanding of what dementia feels like. Initially, I was diagnosed with Parkinson's and Lewy body dementia after a four-hour test at a reputable hospital, which later turned out to be incorrect. Seven years later, I learned that I had complex post-traumatic stress disorder (CPTSD) and the diagnosis that initially alarming Parkinson's was actually restless body syndrome resulting from potassium deficiency and the need for extra magnesium glycinate and vitamin D.

While I am not a medical professional, I have a keen understanding of the(updated medical literature) and have also spent many hours researching and studying the information available on doctors' sites. As someone with a great memory and cognition, I have been in a unique position to experience the effects of what I initially misunderstood as dementia.

Common Symptoms of Dementia

People with dementia may experience confusion, memory loss, difficulty with communication, and changes in mood. These symptoms vary based on the individual and the type of dementia they are diagnosed with. Some common early signs of dementia may include confusion, being fearful, angry, or frustrated, and experiencing memory lapses. In later stages, individuals might show no understanding of their surroundings or might be in their own little worlds, seeming happy despite the condition. Some might also engage in constant wandering and walking as a way to cope with the overwhelming mental stimulation.

Exploring the Experiences

The experience of dementia can be as varied as the individuals themselves. Not everyone truly knows what it feels like to have dementia. In the early stages, one might feel confused, fearful, and irritable, realizing that they are forgetting important details like bills and birthdays. The uncertainty about the future can be deeply distressing. In more severe cases, some individuals may seem disoriented or exhibit repetitive behaviors that could be a way to cope with the overwhelming stimuli.

Throughout my career in care and nursing homes, I have had the opportunity to interact with individuals facing dementia at different stages. Some seemed to have no idea what was going on, while others were in their own little worlds where they appeared content. These varied experiences have helped me understand the complexity of dementia and the diverse ways it can affect individuals.

A Personal Reflection

I believe that we can gain a deeper understanding of what dementia feels like by reflecting on personal experiences and the experiences of those around us. In my case, despite facing health challenges, my memory and cognition remained intact. This has allowed me to reflect on the journey of others with dementia and consider the various ways in which this condition can present itself.

One of the most profound realizations is that the mind has a remarkable capacity to cope and even heal. Just as I convinced myself that I didn't have dementia, many others can find solace in various forms of spiritual support, focusing on our ultimate source of comfort and guidance. Whether it is seeking wisdom from our Father in Heaven or others, the importance of emotional and spiritual support cannot be overstated.

Conclusion

While we may not fully grasp the complexity of what dementia feels like, our efforts to understand it can make a significant difference in providing empathetic support. Through personal experiences, research, and the wisdom of those who have faced and overcome similar challenges, we can continue to grow in our understanding and offer the best possible care and support.

For more insights and perspectives on dementia, explore my Quora Profile and join the conversation with others sharing their experiences and knowledge.